Patient Advocates Join Ovarian Cancer Research Team
Fox Chase is the only center in Pennsylvania and the first of only two facilities on the entire East Coast to receive a SPORE grant for ovarian cancer.
NCI SPORE grants support innovative, multidisciplinary research approaches that potentially have an immediate impact on improving cancer care and prevention.
Fox Chase Cancer Center, a National Cancer Institute Specialized Program of Research Excellence (SPORE) in prevention, diagnosis and treatment of ovarian cancer, hosted a workshop for ovarian cancer researchers and patient advocates. The goal of the workshop was to identify and develop the role of patient advocates in the SPORE.
"From Bench to Bedside"
The SPORE grant funds Fox Chase research projects that focus on translating basic research findings from the laboratory to clinical settings. The goal of this "translational" research is to discover methods of earlier detection and improved prevention and treatments for this deadly disease.
The ovarian cancer workshop at Fox Chase was lead by Deborah Collyar, director of Patient Advocate Research Team (PART) Programs. Collyar assists institutions with SPORE grants in cultivating effective collaborations with cancer patient advocates to develop local PARTs.
Fox Chase Values Patient's Ideas
April Donahue of Philadelphia is the first PART member at Fox Chase. "By holding the workshop, Fox Chase has truly shown its commitment to having patients involved in research from all aspects and they've taken their patient advocate program to the next level," said Donahue, who also serves on the board of directors for the National Ovarian Cancer Coalition. "The open dialogue between researchers, doctors and advocates allowed us to brainstorm and develop plans to move our translational research forward. The atmosphere of the workshop was very relaxed and the advocates felt comfortable sharing their ideas to help the team of researchers."
"To have the face, thoughts and opinions of patients in front of the researchers can be nothing short of a win-win situation," said Karen Mason, an ovarian cancer survivor and a member of Fox Chase's PART program. "The workshop was invaluable for showing me how we can all work together."
The Fox Chase researchers and the PART plan to meet quarterly.
"Patient advocates offer fresh ideas about research and recruitment, and voice patient concerns," said Robert F. Ozols, principal investigator of the ovarian SPORE at Fox Chase Cancer Center. "Karen Mason and April Donahue have been steadfast supporters of ovarian cancer research at Fox Chase for years and we're pleased to have an opportunity to capitalize on our relationship. Their contributions are extremely valuable."
The PART program is supported by a grant from Avon and the National Cancer Institute.
For more information about gynecological cancer treatment and prevention at Fox Chase Cancer Center or to make an appointment, call 1-888-FOX CHASE (1-888-369-2427).
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