Desmoid Tumors

  • Brianna Jackson

    Brianna Jackson

    Abdominal Desmoid Tumor

    Brianna Jackson’s is a cautionary tale. It’s a story of a rare cancer, one that affects only two to four people per million. It’s also a story of a young woman making choices based on her lack of health insurance. Fortunately for Brianna, the story has a happy ending, but for a woman so young, she’s been through a lot.

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General Sarcoma Patient Stories

  • Maria Bento

    Maria Bento

    Maria Bento and her husband, Jose, left Portugal in 1973 and moved to America - the land of opportunity. Once here, they built both a close-knit family and a successful construction business in Philadelphia. Maria, a strong-willed woman, has learned many lessons over the years. Most importantly, to trust her gut and to question the decisions of others. That lesson might have saved her life.

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Leiomyosarcoma Patient Stories

  • Barbara Cremean

    Barbara Cremean

    Beating the odds is old hat to Barbara Cremean. In 1998, after dropping her daughters off at school, she was hit head on by a drunk driver. "I was on my way to the most important meeting of my career—and my life changed in an instant," recalled Barbara. She underwent spinal fusion surgery and started the long road to recovery. Little did she know, her serious health problems had just begun.

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Liposarcoma Patient Stories

  • Barbara Pennypacker

    Barbara Pennypacker


    In late 2010, Barbara Pennypacker, who was 53, had been experiencing pain on her side for several months.  She was losing weight and at first thought she had a mass on her gall bladder. In January, 2011, as Barbara‚Äôs pain intensified, her primary doctor sent her to the emergency department at her local hospital. Doctors ordered several tests, including CT scans, blood work, urine testing and X-rays.

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Osteosarcoma Patient Stories

  • Tricia Cantwell

    Patricia Cantwell

    Imagine being 33 years old going to the dentist because you have pain in your mouth, likely caused by your wisdom teeth. So you have all of your wisdom teeth extracted but still have a throbbing pain. Your oral surgeon takes an x-ray and sees a bone fragment. He takes a biopsy, which is sent to a local lab, but they are unable to make a definitive diagnosis. The biopsy is then sent to the Mayo Clinic, where it is determined, 6 weeks later, that you have osteosarcoma - otherwise known as bone cancer, of the jaw.

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